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Inquiries into health care: learning or lynching? (Nordmeyer Lecture, September 2008)
Ron Paterson,
Health and Disability Commissioner
Wellington School of Medicine, University of Otago,
17 September 2008
Introduction
Thank you for the invitation to give this year's Nordmeyer
Lecture.
Any opportunity to lift my gaze beyond my daily diet of
complaints is welcome. Preparing for tonight's lecture gave me an
excuse to learn a little about Arnold Nordmeyer. And to think about
the nature of inquiries into health care.
First, the man himself. Unlike others who have delivered this
lecture, I had the benefit of a superb new biography, Nordy,
written by Mary Logan and published just a few weeks ago. I suspect
that for many children of the 1950s, like myself, Nordmeyer was the
infamous Minister of Finance who delivered the "black Budget" of
1957. I also knew that he was a former Presbyterian Minister, which
rather endeared him to me. And that was about it.
I now know that as Minister in Kurow, Nordmeyer witnessed
terrible suffering during the depression years of the early 1930s,
and became convinced of the need for better health service
provision for the public. He was impressed by the example of the
Public Works Department health scheme for workers on the Waitaki
hydro dam. With his friend Gervan McMillan (the local GP),
Nordmeyer developed the concept of a health and social security
scheme. McMillan and Nordmeyer both entered Parliament as MPs in
the Labour landslide of 1935, and Nordmeyer (as chair of the Select
Committee) became the architect of the Social Security Act 1938,
which made comprehensive provision for health, for security of
income, and for the general welfare. It paved the way for free
hospital care and access to a wide range of health benefits, many
of which were rolled out while Nordmeyer was Minister of Health
from 1941 to 1947, and which endure today.
One of the most fascinating aspects of Mary Logan's biography is
the tenacity and good grace with which Nordmeyer debated with the
New Zealand branch of the British Medical Association, in trying to
ensure free primary medical care without a surcharge. The BMA ran a
very effective public relations campaign, and demonised Nordmeyer
and his reforms. Debate about free primary medical care and fees
surcharges continues to this day.
If you have spent eight years undertaking health inquiries, and
dealing with the official representatives of the medical
profession, you learn a little bit about tenacity, and the power of
myth and perception to obscure evidence and reality. Which leads me
to the topic of my lecture: "Inquiries into health care: learning
or lynching?"
Why do we inquire?
I want to start by examining why we hold inquiries into health
care. In the foreword to the recent Law Commission report A New
Inquiries Act, Geoffrey Palmer says that "[s]ince its inception,
the New Zealand Government has had a culture of inquiry" and that
"[m]odern government is an endless procession of policy reviews,
investigations and inquiries of one sort or another". If that is
true of government generally, it is certainly true of health
care.
In a report in 2005, the British House of Commons Public
Administration Select Committee drew up a list of the purposes of
government inquiries - establishing the facts, learning from
events, catharsis or therapeutic exposure, reassurance,
accountability, blame and retribution, and political
considerations, to which the Law Commission has added "policy
development". A 1996 collection of essays entitled Inquiries after
Homicide (in the context of inquiries after homicides by
psychiatric patients in England) offers a shorter list: learning,
catharsis, reassurance and accountability. I think these are the
main reasons inquiries are held. I take "learning" to encapsulate
"establishing the facts". After all, finding out what actually
happened is a prerequisite to any learning. Political
considerations are doubtless often relevant to a Government's or
Minister's or Select Committee's decision to call an inquiry - we
saw this with the Gisborne Cervical Cancer Screening Inquiry, which
enabled Minister of Health Wyatt Creech to get the issue off the
front pages in the run-up to the 1999 election. And some
Commissions of Inquiry are clearly intended to help develop policy
- the current Royal Commission of Inquiry into Auckland Governance
is a good example. Warwick Brunton's research has identified five
major policy-advisory inquiries from 1858 to 1996, which helped
shape national mental health policy.
So, if we focus on the shorter list, the tension is immediately
obvious. There is a spectrum of reasons: learning, catharsis,
reassurance and accountability. It is this tension that I sought to
capture in my question, "Learning or lynching?"
What kind of inquiries into health care?
I need to clarify the sort of inquiries I want to discuss
tonight. When something goes wrong in healthcare, the health
professionals involved in the incident will often engage in long,
hard self-reflection about their own practice. They may discuss a
case informally in a peer review meeting. Or they may present it
more formally in a setting like a mortality and morbidity meeting.
These are important, highly desirable activities. They reflect the
long and honourable tradition of a "culture of inquiry" in
medicine. In an important paper in 1983, Neil McIntyre and Karl
Popper argued for "the critical attitude in medicine", what they
called "the need for a new ethics", to "search for our mistakes and
investigate them fully … to be self-critical".
Criticism and review by peers is an essential form of inquiry.
But it does not connote the element of formal, external review that
comes to mind when we speak of an "inquiry into health care".
This leads me to a further distinction. If a hospital or
district health board launches an investigation into an adverse
event, or even into a series of events, we call that an internal
inquiry. Of course the board might decide to commission an external
reviewer (often another clinician from the same field, but
sometimes a panel). Canterbury District Health Board did this last
year, to review the care provided to 25-year-old Dean Carroll, who
died as a result of overwhelming sespis less than 12 hours after
being discharged from Christchurch Hospital Emergency Department.
It was a careful review by people external to Canterbury DHB - but
it was dismissed by the family as a whitewash.
This is an important distinction. Internal inquiries (even if
undertaken by external reviewers) may be equally effective for
learning purposes - finding out what happened and making
recommendations for improvement - but a lack of independence may
prevent them fulfilling the purposes of catharsis, reassurance and
accountability.
And so we come to the sort of inquiries I had in mind with my
topic for this lecture: inquiries undertaken by an independent,
external body.
Inquiry bodies
Independent inquiries in the health sector take a variety forms.
The main types of health inquiry are those undertaken by a Coroner,
by HDC, or by a one-off inquiry, usually appointed by a Minister.
Each has formal status or official standing. They also have
specific powers (for example, to compel the provision of relevant
evidence), either under the statute that creates the inquiry body
(such as the Coroners Act or the Health and Disability Commissioner
Act), or by Ministerial appointment as a Commission under the
Commissions of Inquiry Act 1908 or as a "special health inquiry"
under the New Zealand Public Health and Disability Act 2000, with
more limited powers.
All inquiries have a specific function and terms of reference.
In the case of the Coroner, the purpose of an inquest is to
establish the cause and circumstances of a reported death (such as
during medical or surgical treatment), and to make recommendations
or comments to reduce the likelihood of other deaths in similar
circumstances.
In the case of HDC, the inquiry is limited to investigation of
"any action of a health care provider … if the action is, or
appears to the Commissioner to be, in breach of the Code" of
Patients' Rights. The focus is on the possibility of substandard
care. In an important ruling during Robyn Stent's Canterbury Health
inquiry, the High Court in the Nicholls case upheld the
Commissioner's jurisdiction to investigate systemic issues at the
organisational level, so long as the investigation relates to
alleged breaches of the Code.
Commissions of inquiry or "special health inquiries" appointed
under the New Zealand Public Health and Disability Act may inquire
into (a) funding or provision of health services; (b) management of
any publicly owned health or disability organisation; or (c) a
complaint or matter arising out of the administration of the NZPHD
Act.
Note the important differences between these external inquiry
bodies. The Coroners and HDC are permanent bodies whose core
business includes the conduct of inquiries, whereas a Commission of
inquiry or a "special health inquiry" is exactly that: a one-off,
special event. It is no surprise that Commissions of inquiry are
often headed by judges. A judge is called upon to hear evidence and
reach conclusions about every aspect of life, so no special
expertise (beyond legal acumen and wisdom) is called for. Coroners
are judicial officers. They do, naturally, develop expertise in
end-of-life issues. But they are not part of the health sector.
The Health and Disability Commissioner, in contrast, is not a
judge and is not even required to be a lawyer. No doubt there are
pros and cons to the appointment of lawyer to this key role of a
statutory decision-maker inquiring into health care. The appointee
is required by statute to bring knowledge of the health care system
and of the needs of health consumers to the role. HDC is, I think,
very much seen as part of the health system, rather than simply
part of the legal system. This also has important implications for
the many inquiries that HDC undertakes into health care.
One final distinction relates to the form of the inquiry.
Coroner's inquiries and Commissions of inquiry are usually referred
to as public inquiries, because they hold public hearings and the
evidence is publicly available. HDC inquiries may be conducted in
public or private, but to date every inquiry has been held in
private - even though the terms of reference of an HDC inquiry, and
its findings and recommendations, may be publicly released and
highly publicised. This distinction between public and private
hearings may be important in seeking to achieve learning without
lynching.
Reflections on the Cartwright inquiry
So much for the landscape of health inquiries in New Zealand. I
want to look at some specific inquiries. No discussion of health
inquiries in New Zealand would be complete without acknowledging
the pivotal role of the Cartwright Inquiry. It is timely to do so.
Last month marked 20 years since Judge Silvia Cartwright delivered
her Report of the Cervical Cancer Inquiry, having been appointed as
a Committee to inquire into "allegations concerning the treatment
of cervical cancer at National Women's Hospital and into certain
other related matters". It took just ten days for the Government to
announce a judicial inquiry in June 1987, after Metro published the
article by Sandra Coney and Phillida Bunkle entitled "An
Unfortunate Experiment at National Women's Hospital". It told the
story of "Ruth" (who later revealed herself as Clare Matheson), one
of many women with carcinoma in situ left untreated by Associate
Professor Herb Green as part of a study to see whether doing
nothing was as effective as standard treatment (cone biopsy,
hysterectomy, etc) in preventing invasive cancer.
The very public inquiry, and the Report that followed, led to a
seismic shift in the patient-doctor relationship in New Zealand.
Judge Cartwright recommended that patients' rights (in particular,
the right to informed consent) be enshrined in legislation and
enforceable by a complaint system overseen by a Health
Commissioner; an overhaul of the medical disciplinary system;
independent patient advocates; and a rigorous system of ethical
review. All this came to pass in the years that followed, including
the appointment of the first Commissioner in 1994, and the
enactment of the Code of Patients' Rights in 1996.
It is interesting to speculate whether these changes would have
occurred without a public inquiry, and the legal process - notably
cross-examination of witnesses by lawyers funded by legal aid -
that tested the evidence. The simple answer is "no". As Silvia
Cartwright noted in a conference paper last month, "[T]his was a
drama unfolding in the nation's living rooms." Dame Silvia also
made another interesting comment, "[It was] a drama in which there
were goodies and baddies" (emphasis added). It reflects the natural
human tendency to look for a scapegoat whenever a great disaster is
uncovered. The urge to lay blame runs deep.
Learning, catharsis, reassurance and accountability? All of
these were achieved to varying degrees by the Cartwright Inquiry
and its aftermath. But the learning has been contested. The
revisionists, most recently in the guise of University of Auckland
historian Lynda Bryder, continue to argue that Judge Cartwright got
it wrong; that the women who were part of Green's study had the
same outcomes in terms of invasive cancer as those treated before
or after. As Charlotte Paul has written, "Not a scrap of empirical
evidence has been published by the revisionists." Indeed, a new
follow-up study of the National Women's patients (led by Margaret
McCredie, with Charlotte Paul, David Skegg and others) confirms the
poor outcomes for the untreated women.
What this tells us is that if the stakes are high enough, the
learning from an inquiry will be hotly contested. And the stakes
were very high indeed in the Cartwright Inquiry. Women had died and
suffered from "the unfortunate experiment". Although the inquiry
was an inquisitorial process, it felt like a trial: of Drs Green
and Bonham, of National Women's Hospital and the University of
Auckland, and even of the medical profession.
How cathartic the inquiry was remains contested territory. Clare
Matheson says in her personal reflections that it has been a
"never-ending story", but I think she would acknowledge the
importance of being able to tell her story publicly and have her
concerns vindicated. Some colleagues of Green and Bonham continue
to refer to the inquiry as a "witch-hunt", which "did a huge
injustice in totally discrediting" them. For them, it was certainly
a public humiliation - even though the formal accountability
processes (including the Medical Council disciplinary process
finding Professor Bonham guilty of disgraceful conduct) followed
and were separate from the inquiry.
But for those not directly involved in the inquiry, the Report
and the implementation of most of its recommendations were
cathartic. Stephen Hilgartner, writing in the aftermath of
Hurricane Katrina, has commented that "Public inquiries … offer a
ritualized process for collectively 'moving on'". Yet Hilgartner
also notes that inquiries "do not have a guaranteed capacity to
reassure".
As shown by the Gisborne Cervical Cancer Inquiry in 2000, and
the 2001 report from the Committee of Inquiry headed by Ailsa Duffy
QC, there was still "unfinished business" relating to the national
cervical cancer screening programme. The Duffy Report concluded
that the under-reporting of cervical smear abnormalities by Dr
Michael Bottrill in Gisborne was not an isolated case, but evidence
of systemic flaws in the national programme due to lack of rigorous
audit and quality assurance. The inquiry's 46 recommendations
led to changes in the legislative basis of the National Cervical
Screening Register and in the operation of ethics committees.
The learning from the Gisborne Inquiry did not come without its
own costs - it involved millions of dollars, months of argument and
counter argument between lawyers, and mountains of paper and legal
documents. This is one reason why governments are increasingly wary
of embarking on large-scale public inquiries. Recent legislation in
New Zealand and the United Kingdom seeks to control the scope and
cost of inquiries and regulate their form. Under the New Zealand
Public Health and Disability Act, for "special health inquiries",
the Minister is required to give "procedural instructions" to the
inquiry board covering the nature of the inquiry (whether
inquisitorial or adversarial), limits on the questioning of
witnesses by parties and their lawyers (if an inquisitorial
hearing), and directions that the inquiry be conducted efficiently,
with due expedition, procedural flexibility and minimal formality.
Inquiry hearings are to be held in public and evidence is to be
publicly available, unless the inquiry board rules otherwise having
regard to "the interests of any person and to the public
interest".
HDC inquiries
I want to turn now to what have become the most common inquiries
into health care in New Zealand: inquiries by the Health and
Disability Commissioner. HDC undertakes around 100 investigations a
year, but our inquiries into matters of major public concern,
initiated on the Commissioner's own initiative, with the terms of
reference publicly released and the publication of a final report,
have probably had the most impact. There have been several major
Commissioner-initiated inquiries into DHBs over the past decade,
starting with Robyn Stent's Canterbury Health Inquiry in 1999, and
continuing through my own inquiries into Gisborne Hospital,
Southland DHB, and this year Whanganui DHB.
Each of these inquiries has focussed on hospital and DHB
systems, and made recommendations for improvements. As
Commissioner, I have quite consciously sought to bring a systems
focus to my inquiry analysis - reflected in the motto adopted by
HDC, "Learning, not lynching, Resolution, not retribution" (phrases
that came to me one day in 2001 when I was mowing the lawns).
Others will judge how successful we have been. NZMA chair John
Adams said of our Gisborne Hospital report, "HDC looked beyond the
culpability of individual practitioners to the system." Alan Merry
and Mary Seddon writing in the New Zealand Medical Journal in 2006
commended HDC on "a world-leading focus on addressing aspects of
the system which contribute to patient harm, rather than only
seeking to identify individual scapegoats when things go
wrong".
But we have our critics, and they have been fierce.
Unsurprisingly, as in the aftermath of the Cartwright Inquiry, they
have not all been disinterested. Colleagues and the Southland DHB
chair rallied behind the psychiatrist found in breach in HDC's
Southland Inquiry, and demanded a formal apology when the
disciplinary tribunal found no basis for discipline. For the
record, I did not apologise; how could I, when I had given my
honest assessment of a mass of evidence, and had been charged with
a different question: whether psychiatric patient Mark Burton
received mental health services of an appropriate standard.
HDC's Wellington Hospital inquiry
Challenges have also come from professional leaders. Last year,
the President of the New Zealand Medical Association, in a
Presidential Address entitled "Loyal to the Profession of Medicine
and Just and Generous to its Members" (the title gave a hint of
what was to come) fiercely criticised an HDC decision involving
Wellington Hospital. The case involved Mr A, a 50-year-old patient
with a chest infection admitted to hospital in September 2004, and
the care he received over the 40 hours prior to his death. In my
decision last April, I reported on serious failings on the part of
individual nursing and medical staff and the hospital system:
failing to respond to signs of deterioration (not reading a chest
X-ray until it was too late), and a lack of compassion for the
dying patient and a lack of candour with his family and the Coroner
after his death.
Let me give you a sample of the NZMA criticisms. My experts had
engaged in "self-deception"; they were guilty of hindsight bias;
their advice had been "clearly influenced by the weight [they] put
on the family's anger and the fact that the patient eventually
died"; the report did not identify the true cause of death; they
had proposed untried "system fixes" (the use of medical emergency
teams), thereby demonstrating "enthusiastic, but potentially
arrogant … expertise or ignorance". The Commissioner himself
was guilty of a media "launch" - presumably a reference to my
three-page media statement entitled "A tragic case at Wellington
Hospital", highlighting the lessons for other DHBs. HDC was also
accused of "broaden[ing] the range of targets of blame" to include
managers as well as staff. The President of NZMA concluded by
calling on the profession to "alert others to the path of arrogance
of ignorance".
I take these criticisms seriously, and I want to respond to
them, because they go to the heart of tonight's discussion of the
nature of inquiries into health care, and whether they amount to
learning or lynching. Let me first deal with the smear of the
"arrogance of ignorance". I went back and read Frank Ingelfinger's
Harvard lecture on "Arrogance", delivered in 1977 but not published
until 1980, after his death. Interestingly, Ingelfinger reserves
his most trenchant criticism for what he calls "the brand of
arrogance subsumed under lack of empathy", and cites as "the most
flagrant example" the labelling of the patient as "non-compliant".
This is the true arrogance in the case of Mr A, who was treated
without empathy and blamed for wanting to leave his hospital bed
for a smoke. To focus on the exact cause of Mr A's death (a matter
that will fall to the Coroner to determine) is to miss completely
the key learning from the case.
It is, of course, valid to worry about hindsight bias (that is,
the fact that the inquiry body and its advisors look through "the
retrospectoscope") and outcome bias (the reviewers' knowledge of
the patient's death). But these concerns do not justify a sideswipe
against inquiries; they highlight the need for care in inquiring.
Here we see at play a fundamental difference between medicine and
law. Medicine is essentially concerned with the prognosis for the
patient - looking at treatment options having established a
diagnosis. Law, in particular a legal inquiry, is necessarily
retrospective. It is impossible to hold an inquiry in advance. Of
necessity, the inquirer looks back at events that have already
occurred. HDC, in undertaking an inquiry, asks what health care the
patient should have received. That is a normative question, rather
than a moralistic question. Nor is it totally irrelevant to note
that the patient died. The fact that there was a bad outcome, and
that a complaint resulted, presents an opportunity to learn from
what happened - in the same way that a mortality review does.
What are the safeguards against "ignorant", hindsight-biased
expert advice? There are several. I inherited a system where expert
advisors were not named in HDC reports, the basis of their
appointment was unclear, and their advice was not always set out in
full. In my view, fairness and confidence in the HDC process
demanded that advisors be nominated by professional colleges, that
they be named, and that their full advice be available to the
providers under investigation, and (upon publication of the final
report) to the profession and the public. Those checks are not a
guarantee of wise advice, but they significantly mitigate the risk
of ill-founded advice. The sanction of professional critique of an
expert's published advice is an important one. And in the rare
cases where there has been disquiet from a specialty group about
the advice relied upon (for example, because it is seen to be "gold
standard"), I have been willing to ask a College to undertake its
own review and provide me with feedback. It has seldom proved
necessary.
It is also important to note that advice is simply that: advice.
We might debate the merits of a non-clinically qualified inquirer
not relying upon the advice of suitably qualified expert advisors.
I have signalled to health professionals that in determining
whether appropriate care was provided, HDC will scrutinise whether
custom amounted to care. But of course in matters of assessment,
diagnosis, and treatment, expert opinion will carry significant
weight. That does not mean that an expert's suggested solution will
automatically be endorsed. Although HDC's advisor in the Wellington
Hospital case flagged the need for rapid response systems to
respond to physiologically unstable patients, my actual
recommendation to Capital and Coast DHB was to "review its systems
of care for physiologically unstable patients" in light of my
expert's advice. I agree that inquiry recommendations should be
evidence-based, although in seeking to improve patient safety we
cannot always wait for randomised controlled trials.
The denigration of experts is not a new phenomenon. It continues
to this day - on Monday I learnt that a specialist under
investigation by HDC had sent a threatening email to the expert who
had provided preliminary advice on a file, and to his Clinical
Director. Charlotte Paul and Linda Holloway discussed this point in
the aftermath of the Cartwright Inquiry. Writing in the New Zealand
Medical Journal in 1990, they asked: "Is anyone involved in a
critical assessment of a colleague's work to be regarded as a
proper target for … denigration? Only by withstanding such attacks
and refusing to become cynical can we assist society in finding
better ways to deal with error in medicine."
Sack the Commissioner
Denigration of an inquiry body is not confined to health
professional critics. At the risk of giving my critics an idea, let
me tell you what happened across the Tasman. In December 2003 the
New South Wales Health Minister sacked the Health Care Complaints
Commissioner, Amanda Adrian. According to the Minister, the
Commissioner's findings in her Campbelltown and Camden Hospitals
inquiry report "did not go far enough" and "failed to hold a single
person accountable".
The Commissioner's 374-page inquiry report examined 47 clinical
incidents at Campbelltown and Camden Hospitals (southwest of
Sydney) between 1999 and 2003, following a complaint by
whistle-blowing nurses. It revealed disturbing patterns of
inadequate care and treatment at the two hospitals, and at least 17
deaths were attributed to substandard care. The report made
detailed recommendations to address the multiple systemic problems.
But not one individual doctor or nurse was named or blamed for the
litany of tragedies, although the possibility of disciplinary
action remained open.
For that, the Health Minister dismissed the Commissioner and
launched a special commission of inquiry headed by a leading
lawyer, to re-investigate patient care at the two hospitals. A
Coroner was also asked to examine the 19 deaths. Two doctors were
suspended and another nine faced investigation into their
performance. The Health Minister told the media: "The report does
detail in great length instances of clinical failure, deficiencies
in management systems, and the failure to ensure appropriate
supervision. But … [it] simply doesn't go far enough in terms of
finding anyone accountable for these failures."
Any Minister of Health oversees a complex and politically
charged portfolio. The NSW Minister found himself caught up in a
media and political storm about patient deaths at local hospitals.
The heat was turned up once the Commissioner's provisional report
was leaked. The whistle-blowing nurses considered that the report
did not go far enough, and were given plenty of airtime on Sydney
radio. The Opposition seized the opportunity to accuse the
Government of mishandling the health portfolio. Meanwhile, a
parliamentary select committee had turned its spotlight on the
Commission, highlighting investigation delays and a backlog of
cases. The Minister's media comments in sacking the Commissioner -
"Today is about accountability, about having a clear and
transparent process … to provide closure and justice" - say more
about politics than health care.
Could it happen here? I think not. The Health and Disability
Commissioner is appointed by the Governor-General, and can be
removed (by the Governor-General on the advice of the responsible
Minister given after consultation with the Attorney-General) only
for "misconduct", "inability to perform the functions of office",
"neglect of duty", or breach of duty (depending on the seriousness
of the breach). No such independence exists in New South Wales (in
contrast to the other Australian states). Like any public agency,
Health Commissioners must be accountable for their performance, but
they must also be able to undertake health inquiries without fear
or favour, independent of the Government of the day. I am happy to
report that I have always been able to do so.
Learning or lynching?
I want to return to the tension between learning and
accountability. Some inquiries into health care are expressly
enjoined not to assign fault or blame. A Coroner's inquest is a
good example. Its purpose is not to determine fault although, in
identifying the cause and circumstances of the death, and making
comments or recommendations so that lessons may be learnt, it is
sometimes inevitable that fault is attributed to a party.
But HDC is required to makes findings about whether an
individual provider or an organisation breached the patient's
rights. We must walk a delicate balance between holding systems to
account, but attributing individual responsibility where
professionals fail to fulfil their duty of care when working within
a flawed system. We do so in an often acrimonious environment,
where health professionals, aided and abetted by lawyers, bridle at
any proposed criticism of their care. Far more often, we single out
DHBs and other organisational providers as being in breach of the
Code, and acknowledge the impossible situation faced by individual
medical staff. The combination of HDC's approach to finding doctors
in breach of the Code, and the Medical Council's use of competence
reviews to help the poorly performing practitioner, has led to a
dramatic decline in discipline.
As James Reason has noted, a "just culture" does not mean that
we should turn a blind eye to individual failings. In the New
Zealand health inquiry system, the Commissioner is required to
attribute responsibility in determining whether the Code has been
breached. It is a key aspect of our modern system on health
professional accountability. Stephen Sedley has noted that "no
responsible inquiry can be silent about professional misjudgements
if it uncovers them".
Furthermore, I do not believe that accountability can be equated
with lynching. Indeed, I recall the American-trained psychiatrist
who complained to HDC about the lack of care by a nurse found in
breach of the Code for failing to undertake regular checks on a
mental health patient in seclusion, who died overnight. The
psychiatrist took umbrage at my use of the phrase "learning, not
lynching", when I declined to refer the nurse for discipline. He
was right to do so.
Research from Marie Bismark and colleagues shows that the
majority of complainants are motivated to prevent the same thing
happening to someone else. Only a tiny minority of complainants
seek punishment, yet a significant proportion of doctors interpret
a complaint as an assault on their person, and perceive themselves
as victims of retribution. Curiously, when doctors become aggrieved
patients or family members, they are often very unforgiving of
their peers' mistakes and unsympathetic towards HDC's
rehabilitative approach. As an aside, in 2005, a senior doctor
wrote to me that "Learning and resolution are noble sentiments if
we are talking about milk products at Fonterra. But we are in the
death, disease and disability industry … so while learning and
resolution are under way … deaths occur."
Minimising the toxic effects
We do need to minimise the collateral damage that health
inquiries can cause. To quote Sedley again, "For the individuals
under the spotlight public inquiries are a disease, not a cure."
That, of course, is not the same as lynching, which is
characterised by a lack of fair process and the substitution of mob
rule. But we do need to recognise what I have called the "toxic
effects" of complaints and inquiries.
Whatever the good intentions of complainants and inquiry bodies,
it may sometimes feel like a modern-day lynching if an individual
provider is publicly revealed as the Dr X who is criticised (but
not named) in a publicly released inquiry report. Our Bill of
Rights enshrines freedom of expression as a fundamental right (it
even permits nude fishing on the Kapiti coast!), and parties are
free to tell their story to the media, but we are right to worry
about the long-term effects of such publicity.
After a major public consultation earlier this year, HDC adopted
a policy of naming DHBs, hospitals and rest homes whose systems are
found in breach of the Code, unless it would not be in the public
interest to do so; but individuals found in breach will continue to
be named by HDC only in exceptional cases where public safety or
flagrant misconduct requires it. The publication this week, on an
internet blogspot, "PsychwatchNZ", of allegations about a named
mental health nurse who has not even been subject to a formal
inquiry, let alone an adverse finding, is a sad development.
I will continue to caution journalists who check with me about
the risk of premature publicity before an inquiry is complete. This
is a particular risk if an inquiry is being conducted in private,
pending public release of a final report. One legacy of the Privy
Council's overturning of Justice Peter Mahon's Erebus inquiry
report (for breach of natural justice in making the "litany of
lies" comment that had not been put to Air New Zealand) is the
requirement that proposed adverse comment be released to affected
persons, with an opportunity to respond. This can have its own
adverse effects. Complainants may be aggrieved if the proposed
findings are not "hard-hitting enough" or will be watered down as a
result of submissions by adversely affected parties on provisional
findings. If a provisional report is leaked, the media can be used
(as it was during the Campbelltown and Camden inquiry) in a
pre-emptive strike, to build public pressure for more punitive
inquiry findings.
As Onora O'Neill demonstrated so compellingly in her 2002 Reith
lectures, trust is fragile. Health professionals and healthcare
delivery systems are also fragile, and the price of the full glare
of publicity during an inquiry process (when grieving families and
their lawyers may make sensationalist allegations that garner far
more publicity than the eventual inquiry findings) may be
irreparable damage to reputation, and systems that close ranks in
the future and become more, not less, susceptible to failure. If a
primary purpose of an inquiry is to improve public safety in the
future, there may be a case for suppression of the names of
individual clinicians at least until an inquiry reports its
findings, or for private hearings followed by a public report.
Learning from inquiries
Let me conclude with a few observations about learning from
inquiries, and the implementation of inquiry recommendations.
Kieran Walshe has examined the use of inquiries in the NHS. In a
2003 report, he notes that inquiry reports often gather dust, their
recommendations are frequently not implemented, and the themes of
organisational failure are recurrent. Recent research from Joanne
Travaglia and Jeffrey Braithwaite of the University of New South
Wales notes that patient safety inquiries across the world
consistently identify the same problems: health care below
promulgated standards; lack of quality-monitoring processes;
patients, family members and concerned staff being ignored and
excluded; whistle-blowers being vilified; and persistent
deficiencies in teamwork, systems and communication. A list to
which one might add shortage of staff and other resource
constraints.
I think we are right to worry about indiscriminate public
inquiries of the sort that have become fashionable in New South
Wales. In my view, at least if a country has a permanent health
inquiry body, one-off Ministerial inquiries should be reserved for
issues giving rise to widespread public concern and loss of public
confidence. The events that led to the Cartwright and Gisborne
Cervical Cancer Screening inquiries warranted such intervention.
Conversely, the Tauranga Hospitals inquiry in 2005 is a good
example of a Minister resisting calls for a government-appointed
inquiry, and letting HDC get on with the job.
We need to learn from our major health inquiries. As Travaglia
writes, "Our analysis of multiple inquiries teaches us lessons from
history that need to be heeded. Those who do not learn the lessons
are compelled to repeat them, at great cost to patients." For good
reason, Ian Kennedy entitled his Report of the Public Inquiry into
children's heart surgery at the Bristol Royal Infirmary, Learning
from Bristol.
Of course, if the lessons are to be worth heeding, inquiries
must be rigorous, and their recommendations should be sound,
evidence-based, and (if they are to be applied elsewhere) able to
be generalised across the sector. The epidemiology of inquiries is
doubtless worthy of study; so, too, is the evidence that
implementation of inquiry recommendations do lead to quality
improvement.
If clinicians and organisations are to learn from inquiries, the
reports need to be well publicised and circulated, and there needs
to be time for quality. We also need effective mechanisms to ensure
follow-up of recommendations. This is not a problem for HDC. We can
and do monitor the implementation of our recommendations, and we
report to Parliament on the results. But it can be problematic for
a government-appointed inquiry, whose existence ceases after
tabling its report.
One possibility is for the inquiry to charge an official agency
such as a Ministry of Health with the task of monitoring and
reporting publicly, at specified intervals (for example, every six
months) on progress in implementing recommendations. But from a
public perspective it has its drawbacks, as the Ministry may not be
seen as independent enough. After the Gisborne Cervical Screening
Inquiry both health officials and an independent, overseas
pathologist were charged with making regular reports on progress on
the recommendations. But after a couple of reports, the overseas
pathologist was unavailable to continue the job. The public were
left to rely on regular updates from the very Ministry that had
been found wanting in the inquiry report. In this instance the
media played an important role in following up progress - alerting
the public to time slippages, and holding public officials to
account. Another approach could be to provide for an independent
statutory agency, like the National Audit Office in the United
Kingdom, to follow up and report on the implementation of inquiry
recommendations.
Reassurance for communities that improvements have been made is
also important, so long as it is justified. We care about our
hospitals, especially in our provincial centres like Gisborne,
Invercargill, and Wanganui, and we want to know that problems are
being fixed. With its unusual mix of inquiry and public watchdog
roles, HDC can help provide some independent assurance, once an
inquiry has established the facts and determined
accountability.
Conclusion
We have a duty to inquire. The issues considered through
inquiries form the visible tip of an iceberg of serious,
preventable adverse events. And, like all icebergs, the most
serious threat lies unseen below the waterline. Major failures are
difficult to expose and investigate, and chance plays a large part.
Often, problems will be well recognised by key individuals within
the organisation, though even high levels of tacit knowledge may
not lead to action, particularly within a dysfunctional
organisation. Would-be whistle-blowers may be deterred by the lack
of appropriate protection and professional support. The result may
be immense harm to patients, health professionals, and healthcare
organisations.
We cannot simply rely on patients, journalists, and
whistle-blowers to alert us to major failures in healthcare. We
cannot turn a blind eye to the harm we see around us. We need a
culture of inquiry that encourages health professionals to discuss
their concerns, mechanisms that enable them to share, learn and
implement changes, and processes that support more informed
scrutiny of performance and quality by the public and media. If we
fail to detect, investigate and learn from major failures in
healthcare, important opportunities for improvement are likely to
be missed, and the chances are surely higher that similar failures
will happen again.
As Commissioner, I will continue to encourage the health
professions to undertake their own inquiries, for I am convinced
that the best lessons are learnt at home. But there will always be
a place for HDC to undertake inquiries where external scrutiny is
necessary. We will continue to take seriously our responsibility to
find and share the learning from inquiries. We owe this to the
complainants who seek our help, to the providers who invest much
time and worry in our inquiries, and to the broader community,
which places its faith in the Commissioner as a public watchdog. We
will ensure that our processes are fair, and will hold fast to our
belief that retribution is futile if our aim is to improve health
care.