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Right 7(4) Consultation

Health and disability research involving adult participants who are unable to provide informed consent

HDC is commencing a consultation regarding research with participants who are unable to give informed consent.

The effect of Right 7(4) (Code of Health and Disability Services Consumers' Rights) is that such research cannot proceed unless it is in the best interests of the participants. Frequently the outcome from the research is uncertain so it is difficult to know whether the participants will be better off participating in the research, than not participating. However such research might provide important information of benefit to others.

The consultation will continue until 30 April 2017. Your contribution would be most welcome.

 

Click here to download the full consultation document. (PDF, 1.2mb)

Click here to provide your submission online.

Click here to download the Consultation Response Form (PDF, 723kb) if you would prefer to make your submission via hard copy. This can be mailed to HDC, PO Box 11934, Wellington 6142.

 

An EASY READ version of these documents is available here.